@modens Just a thought but have you discussed the tapering down of the methyl prednisone with your doctor to see if that is a possible cause of the return of some of your symptoms? I've had 2 occurrences of polymyalgia rheumatica (PMR) and tapering down too fast made the pain come back quickly. I took 3+ years to taper off of prednisone the 1st time and 1-1/2 to taper off the 2nd time.

Wondering if your doctors think you might have Mixed Cryoglobulinemia which is another rare form of the disease.

NORD - Mixed Cryoglobulinemia: https://rarediseases.org/rare-diseases/mixed-cryoglobulinemia/