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Are you taking Reclast for osteoporosis?
Osteoporosis & Bone Health | Last Active: Feb 14 5:27am | Replies (267)Comment receiving replies
@colleenyoung and others,
I am still not on anything. This is such a difficult decision. I have a new DEXA scheduled in October and appointments with the endocrinologist that I went to last year who recommended Reclast and am also trying to make an appointment with the endocrinologist I see for diabetes and hypothyroidism so I can get a second opinion. Both of them are very highly regarded. I am having so much trouble making that appointment though that I'm getting paranoid!
As it is I am exercising, doing weight-bearing exercises along with others, (balance, core, cardio), taking calcium, vitamins D and K. I am scared to death about the medications though. I have a history of having problems with medications. I had to be changed from tacrolimus, the 1st medicine of choice for liver transplant patients, to sirolimus due to problems. When I was on a BP medication a number of years ago I had problems and had to be switched, and recently I had to discontinue a cholesterol medication due to problems. You probably think that it's all in my mind, but actually I never read the side-effects! I went to my doctor for constant cough after she put me on lisinopril and she immediately knew that was the cause, and I was having terrible pains in my legs and a friend asked me if I was on a cholesterol drug, which I was! Who would think that a BP med could cause a cough and that a cholesterol med could cause muscle pains? I also have had problems with some PPIs and with a medication that I was given prior to transplant that that made me sick for two days. So, you can see my reluctance to start on a medication with such serious, well-known side-effects. I still do not know what I will do, I need to do a lot more research before I made a decision but I don't retain medical info well so I want to do it a bit closer to my appointments.
I am trying to follow these discussions to gain as much knowledge as possible to help me with this decision. Right now I am favoring Tymlos for starters.
JK
Replies to "@colleenyoung and others, I am still not on anything. This is such a difficult decision. I..."
@contentandwell I think I posted something on the other post. You have been through so much that I don't feel bad about what I'm gong through. Take care of yourself. My thoughts and prays and with you.
I'm in the same boat. Forteo caused my hands and feet to swell up to the point where I ended up in the doctor's office. My tolerance for some medications is poor, so I've decided to forego the Reclast infusions for now. Having seen a 10% increase in my Dexascan this time around tells me that the Evenity worked. Following up with something is necessary so I don't lose what I've gained, but the side effects for someone like me who has G.I. issues are a deal breaker. BTW - lisinopril also makes me cough!
How did your course of Tymlos go? I really really wanted it to work, and so I ignored the first symptoms of side effects until it got to the point where they knocked me out. Seriously. That was December of 2021. Today—June 15, 2023—I just sat for my first infusion of Reclast.
I am 62 with the bones of an 82-year old. For most of my life I was an athlete, competing at world and national levels as recently as 2009 (masters). So cardio and weight bearing exercises were part of everyday life. I always ate right, abstained from alcohol, sugar, processed meats, manufactured foods, and cigarettes, etc. So it really surprised me three years ago to find out not only that I had osteoporosis, but that it was so severe.
And that's life. We can prepare. We can take precautions. We can believe we're doing or have done all the "right things" but that doesn't necessarily spare us, does it?
Trust and hope all is well. Connect when you can!
@contentandwell
Please share what decision you made about the medication.
I am having the same dilemma about medication. My endocrinologist wants me to make a decision which one I want to use; I’m just not sure which one , or even if I want to take any of them.
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@contentandwell You have been through so much. I'm proud of you that you still exercise. I don't know anything about reclast, because I'm still on Tymlos. I am the one who had that 9 hour back fusion. After listening to all your problems makes me feel not so bad about what I'm going through. The cholesterol medicine I am on is Rosuvastatin Calcium 10 mg. It doesn't cause any side effects. Other ones I have been on caused me to ache all over. Having a transplant must not be easy. Yes, I like Tymlos, but inject it at night cause it can cause fatigue. I have to use it for 2 years and then go on something else for my bones. The only problem I have is my right foot that is shorter than the left leg and my surgeon suggested getting 1/4 in lift. I'm not going for walk till I get the lift. My right knee hurts and I have spasms in my right foot. I hope all goes better for you. With me having anxeity and depression things are harder for now.
Bless your heart hand in there.