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Update on my DRG stimulator Implant. Implanted 12 days ago.
Neuropathy | Last Active: Dec 9, 2022 | Replies (117)Comment receiving replies
@jesfactsmon Hi Hank, I absolutely think that the oncologists and cancer surgeons do not want us to know about the possibilities of neuropathy after chemo or radiation. Sad thing is that there are some forms of chemo that do not create neuropathy, from what I have read. My oncologist and surgeon made utterly no confirmation that my having radiation could have caused neuropathy. Their faces went blank. And yet when I had my EMG/NCV test to check for neuropathy, the man who administered the test said that radiation and chemo are often what people tell him about what triggered their neuropathy. Chemo and radiation make big bucks, and I have wondered if that is behind it. If I had more cancer, I highly doubt I would expose myself to those things. I am in enough agony, and I don't need more. And the potential for them to help is not even a given. And sadly, there is not much to help neuropathy at all.....what can I even say. Love to you, Lori
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@lorirenee1 You are right! The thing they said might help Linda was a drug (you may have heard of it) called herceptin. And I am pretty sure if they had just given her the herceptin she would have been fine, i.e. probably no PN. But they said "Well, all the clinical trials were done with herceptin administered with both carboplatin and taxotere" therefore they would only give it in that combo. From what I know now both of those other two chemo drugs definitely cause neuropathy in many people, especially the taxotere, but both for sure. Funny thing (well not funny at all really) after Linda refused to complete the chemo and we got back to Tennessee from San Diego, her oncologist here said if she wouldn't take it any other way, she would agree to give her herceptin without the other two. We gave each other a knowing wink/nod and definitely refused the offer, and we decided never again agree to anything out of hand with that bunch. Harumph!!! 😠 (Can you sense any disenchantment with the cancer establishment here?)