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@jesfactsmon

@lorirenee1 Lori, giant hugs right back atcha. Yes, it's a marvel to me how I went through the first 62 years of life with zero awareness of neuropathy. It's such a living hell for so many people but it sure doesn't get the marketing play that, say, breast cancer does (of course nothing gets THAT kind of attention, which tells you where the $$$ is at) and so everyone with neuropathy suffers in relative silence and solitude, at least for most of the rest of society. And boy when you are going to do chemo they sure keep the fact of neuropathy under wraps. NO ONE mentions it. I am certain it's a conspiracy of silence. They do not want anything to keep you from having the chemo done to you and they do not want you to know what you may be in for. And just to be fair, I am sure there are some who are not in on the conspiracy, just the ones running the show mostly, and others too. We experienced it firsthand with several of the medical professionals we dealt with during Linda's cancer treatment.

Neuropathy is an exquisitely Machiavellian disease and it deserves an equally ingenious solution. My belief is that there is one out there and it will present itself, hopefully within the timeframe most of our lifetimes. Anyway, that is what I believe and what I hope for. All of you here most definitely have it coming to you after all you have been through. Best (and hugs), Hank

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Replies to "@lorirenee1 Lori, giant hugs right back atcha. Yes, it's a marvel to me how I went..."

@jesfactsmon Hi Hank, I absolutely think that the oncologists and cancer surgeons do not want us to know about the possibilities of neuropathy after chemo or radiation. Sad thing is that there are some forms of chemo that do not create neuropathy, from what I have read. My oncologist and surgeon made utterly no confirmation that my having radiation could have caused neuropathy. Their faces went blank. And yet when I had my EMG/NCV test to check for neuropathy, the man who administered the test said that radiation and chemo are often what people tell him about what triggered their neuropathy. Chemo and radiation make big bucks, and I have wondered if that is behind it. If I had more cancer, I highly doubt I would expose myself to those things. I am in enough agony, and I don't need more. And the potential for them to help is not even a given. And sadly, there is not much to help neuropathy at all.....what can I even say. Love to you, Lori