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Update on my DRG stimulator Implant. Implanted 12 days ago.
Neuropathy | Last Active: Dec 9, 2022 | Replies (117)Comment receiving replies
Hi Lori!
My knees burn something awful most of the time! Only my ice gels help. They stay cold for a long time when I cover them with my winter weight down comforter. I also have arthritis in both knees. My ortho doc wanted to do a total knee replacement on my left knee several years ago which is bone on bone, but I don't think I can handle the pain based on my history of prior surgeries.
I am steroid dependent and have severe osteoporosis (bone density scan tomorrow - really scary to see results.) My endocrinologist have wanted me to take the IV medication for it but it lasts 3 months at a time (due to my kidney Dz, which I forgot to mention in my novel about myself and how I live with neuropathy)
Yes, my feet also always feel wet!! Also, when I walk, it feels like I 'm walking on thick sponges! So many different sensations at same time. Go figure!
I forgot to include grandkids and babies are great distractions too!
Thank you ahead of time for my repeats. I just can't remember what I' ve said to who on this blog.
I hope you have a blessed and peaceful night and tomorrow and in your life.
Thank you so very much for your encouragement and support. It means the world to me! 😊
Replies to "Hi Lori! My knees burn something awful most of the time! Only my ice gels help...."
@sunnyflower and @lorirenee1. I have experienced occasional burning and aching around and just above my knees as well. Heat calms it for me. I really can't think of an unaffected body part, to be honest. Polyneuropathy is equal opportunity unfortunately.
@sunnyflower Best of luck with your bone density scan. There must be some good news coming your way soon. 🤞🏻
@lorirenee1 I hope today finds you with comfort and happy distraction. 🤗
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@sunnyflower Hi Sunny, You have so much going on that it is hard to know what is what! My heart breaks reading about you. Our bodies do not discriminate in giving us tons of things, all at once. I want to mention a product that has kept my bone density pretty darn good, as I have osteopenia. It is called AlgaeCal Google their website. It is great for building your bones. I take a pill that depletes my calcium, so I supplement with AlgaeCal My last bone density was quite good, and that is amazing, because the pill I have to take can rob me of calcium. So your feet feel wet, too. Horrid. I also have the walking on sponges!!! Sometimes the sponges are replaced by pebbles, so I will take the sponges. Damn illness is nuts. How could our nerves make us feel such crazy things? And these things run the gamut from excruciating, to odd, to annoying, etc. Yes, distractions do help when possible. I also think a good glass of wine helps. I hate all of this. So hard. Just so hard. Love to you, Lori