← Return to Update on my DRG stimulator Implant. Implanted 12 days ago.

Discussion
Comment receiving replies
@lorirenee1

@sunnyflower Hi Sunny, I do find that distraction with friends is the number one thing to do for pain. They always marvel at me, because I never look sick. I put on makeup, do my hair, and just do the best I can. But sometimes as I sit, my feet are throbbing intensely or just on fire. Sometimes I look at them to see if they look anywhere near normal, because they feel horrid. Oh well. Thank God, that I manage my distractions with friends, fairly decently. Your mixture of illnesses sure makes for a plethora of oddness in you. Such pain from so many things. I used to have Raynauds symptoms, as my hands would blanch in the winter, and temperature changes would make them do that. I do understand so cold, that it burns. I can be freezing and burning at the same time, and often. I can feel like my feet are soaking wet, with no water on them at all. I have to tell you, though, I have never heard of neuropathy effecting the knees. You are literally the only lady that has described this. What does the pain in your knees feel like? I am much more familiar with arthritis in the knee. When Hank described you as an inferno, he is right. Horrid. I don't even know what to say. It is only my feet that does these horrific things, and that alone, wipes me totally out. I wish I had answers, but there are few. Just things to bring down the pain for an hour or two.....I am glad you are here. You are not alone in this. Love, Lori

Jump to this post


Replies to "@sunnyflower Hi Sunny, I do find that distraction with friends is the number one thing to..."

Hi Lori!
My knees burn something awful most of the time! Only my ice gels help. They stay cold for a long time when I cover them with my winter weight down comforter. I also have arthritis in both knees. My ortho doc wanted to do a total knee replacement on my left knee several years ago which is bone on bone, but I don't think I can handle the pain based on my history of prior surgeries.

I am steroid dependent and have severe osteoporosis (bone density scan tomorrow - really scary to see results.) My endocrinologist have wanted me to take the IV medication for it but it lasts 3 months at a time (due to my kidney Dz, which I forgot to mention in my novel about myself and how I live with neuropathy)

Yes, my feet also always feel wet!! Also, when I walk, it feels like I 'm walking on thick sponges! So many different sensations at same time. Go figure!

I forgot to include grandkids and babies are great distractions too!

Thank you ahead of time for my repeats. I just can't remember what I' ve said to who on this blog.

I hope you have a blessed and peaceful night and tomorrow and in your life.

Thank you so very much for your encouragement and support. It means the world to me! 😊