Hi @sunnyflower the way you describe this affliction of yours it sounds like Dante's Inferno. Not trying to be funny at all. Truly it sounds like a type of living in hell here on earth. You are the first one that I can remember describing their neuropathy being bad in their knees. I know you had said earlier that you keep a chilled gel-filled blanket on them. I am glad that something gives you some relief.

I just came home from volunteering for the Red Cross so I have been gone all day. I walked in and said hi to my dear sweet wife and could immediately tell by the look on her face that she was in a lot of pain and had been for several hours. She had that hung down, eyes down cast and squinty grimace that is the tell tale sign that we all know. She is in so much pain today and this is probably the 5th day in a row of just misery. As a caregiver it makes me so sad not to have anything to give her or do for her. She has severely burning feet and a terrible headache, and I am sure very bad tinnitus, she always has that. This is just such a frustrating problem. Just needed to vent, I am so sorry for your personal cross of pain to bear Sunny, it just seems like there so many very wonderful people who are suffering so much. I know it's for a perfectly good reason that only God knows. But all my best to you, Hank

@sunnyflower Hi Sunny, I do find that distraction with friends is the number one thing to do for pain. They always marvel at me, because I never look sick. I put on makeup, do my hair, and just do the best I can. But sometimes as I sit, my feet are throbbing intensely or just on fire. Sometimes I look at them to see if they look anywhere near normal, because they feel horrid. Oh well. Thank God, that I manage my distractions with friends, fairly decently. Your mixture of illnesses sure makes for a plethora of oddness in you. Such pain from so many things. I used to have Raynauds symptoms, as my hands would blanch in the winter, and temperature changes would make them do that. I do understand so cold, that it burns. I can be freezing and burning at the same time, and often. I can feel like my feet are soaking wet, with no water on them at all. I have to tell you, though, I have never heard of neuropathy effecting the knees. You are literally the only lady that has described this. What does the pain in your knees feel like? I am much more familiar with arthritis in the knee. When Hank described you as an inferno, he is right. Horrid. I don't even know what to say. It is only my feet that does these horrific things, and that alone, wipes me totally out. I wish I had answers, but there are few. Just things to bring down the pain for an hour or two.....I am glad you are here. You are not alone in this. Love, Lori