← Return to Update on my DRG stimulator Implant. Implanted 12 days ago.

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@lorirenee1

@sunnyflower Hi, Sunny, Even your name reflects your kindness! When I first read it, I thought of burning, also. Burning from the sun, and serious nerve symptoms. Yes, our description of pain did sound so much alike. As I write, my feet are elevated on the couch, just burning away. If I didn't know better, I would think there was a lit fire inside them. And that is with a DRG stimulator wires and battery implanted in me. I don't know. I just don't know. I will get out today, and meet a friend outside, for lunch. It is about 90 degrees outside, but we will sit under a canopy, and enjoy getting together. I normally kiss my friend hello, but now, we stay away. Life is just strange, and unpredictable. Love everything, as much as you can. Pray when you can. I am gonna go walk around my house now. Sometimes walking helps. Love to you, Lori Renee

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Replies to "@sunnyflower Hi, Sunny, Even your name reflects your kindness! When I first read it, I thought..."

Hi to all my Neuropathy Warriors here! In the midst of awful pain, I just called my DRG ABBOTT rep, to remind him that I have an appt with my Pain Doc next Tuesday. He was happy that I have at least 20% pain relief, that the DRG is doing something, and that more adjustments would help, most likely. I told him, "From your mouth, to God's ears......" God, this is not easy. But the guy has experience with this darn machine, and maybe it will help still. Crossing my fingers, as I can't for the life of me, cross my toes. Love to every one of you!!! Lori Renee

Hi Lori, so glad you're getting out w/ friends. I find distraction is the best medicine for our pain. I can relate to your description of fire. But since I also have Raynaud's Dz, my feet/toes and hands/fingers are freezing to the point of pain so I have to use both heat and ice. The burn is liike liquid nitrogen; so cold it burns. So heat/ice alternating. My neuropathy pain is strongest in my knees and wonder if anyone else experiences that? Take good care, Sunny