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Update on my DRG stimulator Implant. Implanted 12 days ago.
Neuropathy | Last Active: Dec 9, 2022 | Replies (117)Comment receiving replies
Oh, how very sorry I am that the DRG isn't living up to its expectations, Lori. It's really hard, after a person has tried a medication or procedure or implant, to begin feeling some relief, only to have it lose its effectiveness. So disappointing.
Knowing you, I'm fairly sure you'll give the DRG a shot, at least until the time that you've been told it could still start doing its job. I'm kinda hanging in there until I recover from back surgery, to see if my scs will resume its work. The surgeon doing the spinal stenosis decompression is also the doctor who would move forward with other treatments, including - a big Maybe - the DRG implant. I really appreciate you keeping us posted. It's certainly going to be a factor in making the decision to do it or not do it.
I haven't read past your initial post from this morning, Thursday, so I don't know yet how others have responded. I don't want to be out of line in expressing my concern for your mental state. You know as well as anyone how pain and depression/anxiety can feed each other. I feel tears in the back of my eyes, thinking about all that you're going through right now. You have my sincere empathy, Lori. Know that I'll be praying every day for you, along with a bunch of other fellow warriors.
Jim
Replies to "@lorirenee1 Oh, how very sorry I am that the DRG isn't living up to its expectations,..."
@jimhd Hi Jim. So many things to say to you. First, for your support. Just knowing you are there, understanding, thinking of how to help me. Your sensitivity, as you have been so close to suicide, to know that my mood is bleak. How could it not be? I find I am feeling tears in my eyes all of the time, reading about all of us. I get so saddened, as illness just happens, and there is so little for neurological diseases in general. But, at least, we are here for eachother. Sometimes I can barely read my fellow warriors' posts. I find myself crying for everyone. I do know if I can help you make a decision about the DRG, then it has done one good thing. I am hoping that your SCS resumes it's work after your surgery. Time will tell. You are one crazy, hard working warrior guy. That is for sure. But working helps you so much. I have a feeling it drives all kinds of demons away. Anyway, thank you, thank you, thank you. I hope your wife is well, too. Love, Lori Renee
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@lorirenee1 I want to add on to what Jim says here. Lori, you should, if you can, use this forum to express your feelings fully (and I know you do, I am just trying to reinforce it here for you and anyone else). If Connect is not for expressing your emotional pain, than I don't see a lot of value in it. If and when you get down and feeling horrible over this turn of events (i.e. the DRG not helping), write about it here and don't hold back. Perhaps for some and maybe you included, there is a therapeutic value to "letting it all hang out" here on Connect. The misery of this awful state you, my Linda, and many others are in is bad enough without also not having someplace you can go to talk about it. At least people here understand you and what you are going through. Depression and despair need an outlet, and to whatever degree this can do it, great! We are your sympathetic listeners, use us. My best to you in facing this difficult trial, and I hope some light reappears for you at the end of your DRG tunnel.
🤞
Hank