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← Return to Update on my DRG stimulator Implant. Implanted 12 days ago.
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Update on my DRG stimulator Implant. Implanted 12 days ago.
Neuropathy | Last Active: Dec 9, 2022 | Replies (117)Comment receiving replies
Hi all my Neuropathy Warriors! Back to give the latest input on my DRG stimulator. It's not working well, at all. I am still in a lot of pain, and in general, if it continues this way, it was not worth doing. I keep hearing my Doc say that it can take a few months to get it right, but I know they have not gotten it right so far. I can also add some weird leg sensations to the mix, a throbbing lower back where the wires are, general weakness from surgery still. I am due for the Pain Doc on Sept. 1st, and I am sure, the ABBOTT rep will again attempt to adjust electricity. For those of you who are contemplating getting the DRG; Hank's wife, Linda, and Jim.....things to remember; is there always a correlation between a successful DRG trial, and a successful implant? How great is that correlation? I thought I had a successful trial, but so far, it is not translating to the real deal. And do not forget; please have more than 3 days of success at the trial. You need many more to know if it is really working. If I can just help one of you to make an informed decision, than at least, something good has come of this. Love to all of you folks. Our lives are so hard. Lori Renee
Replies to "Hi all my Neuropathy Warriors! Back to give the latest input on my DRG stimulator. It's..."
Lori, what I don't understand is that early on you had said you were getting a nice bit of relief from pain if I remember correctly. When did it transition to less relief? And was it after a tweaking had occurred? It's just so perplexing! Man I hope it does get back on track for you, I can not make myself believe this is it. You know, maybe it will, as they say, take some time to get it absolutely correct. We are both hoping and praying for this to resolve itself and for you to get back on a pain-relieving keel. Hang in their dear friend, keep your chin up if you can and let's all try to be patient at this point. We are expecting improvement for you with this. With love to you Lori, Hank & Linda
@lorirenee1 I just read this Im so sorry to hear it isnt given the relieve by now Calk your Dr. if your legs give you more problems I dont think those wires should be bothering you
Oh my dear @lorirenee1, I am so just plain disgusted. You do it all the right way based upon a studious journey to find the best option for you Lori. And you, the student par excellence for neuropathy and possible treatments, so anticipated success.
Ya no......we don't expect to be cured of neuropathy....that can't happen. We don't expect to have problems and issues with proven treatments, a few adjustments maybe......a little more oomph now and then, but not this.
And I so remember how present you were for me as I was adjusting and re-adjusting medications, Every morning I knew you had my back and wished for success, freedom from pain.
So...my heart, my respect and recognition for your spirit. Take a break......eat chocolate (teasing) and give yourself a hug. Practice self-love and look again........there has to be something waiting just for you, Lori.
May you be free of suffering and the causes of suffering.
Chris
Oh, how very sorry I am that the DRG isn't living up to its expectations, Lori. It's really hard, after a person has tried a medication or procedure or implant, to begin feeling some relief, only to have it lose its effectiveness. So disappointing.
Knowing you, I'm fairly sure you'll give the DRG a shot, at least until the time that you've been told it could still start doing its job. I'm kinda hanging in there until I recover from back surgery, to see if my scs will resume its work. The surgeon doing the spinal stenosis decompression is also the doctor who would move forward with other treatments, including - a big Maybe - the DRG implant. I really appreciate you keeping us posted. It's certainly going to be a factor in making the decision to do it or not do it.
I haven't read past your initial post from this morning, Thursday, so I don't know yet how others have responded. I don't want to be out of line in expressing my concern for your mental state. You know as well as anyone how pain and depression/anxiety can feed each other. I feel tears in the back of my eyes, thinking about all that you're going through right now. You have my sincere empathy, Lori. Know that I'll be praying every day for you, along with a bunch of other fellow warriors.
Jim
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@lorirenee1 I'm sorry about your outcome thus far Lori. 🙁