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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

Thank you Hank. Everyone here is so nice and helpful and always giving out suggestions not demanding like some people. I haven’t told a lot of people about me that I know because all of a sudden they become your doctor. They don’t ask me about it, they would ask me what’s wrong with my leg and why I am walking funny, I would respond oh I have Myotonia Congenita, then instead of saying what is that, they would say You should try this or take this Vitamin. 😡😡 So when I started on Mayo Connect you all gave the correct answer I haven’t heard of that what is it? Thank you all for that and Thank you all for giving me “have you tried this” not telling me to try it.
Thank you again and sorry for venting but everyone here is a breath of fresh air💕 I am CHEERING EVERYONE on may you ALL find Answers and Healing🤞💕
Kim

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@kimcv1
We are a mutual cheering section here Kim. So GO KIM!!!

(Also, your use of emojis made me chuckle 😀)