I have multiple issues going on with my foot and ankle, plantar fasciitis is also one of the main problems. My Achilles big toe joint(no bunion or gout) top of foot Bone, outside of foot and orotund the back of heel to the bottom of heel. It’s just messed up from walking like I have been for about 3 years now. My MC has been getting worse ( but medical papers on MC says it’s not suppose to) Go figure I would go against medical document 😂😂
I have multiple issues going on with my foot and ankle, plantar fasciitis is also one of the main problems. My Achilles big toe joint(no bunion or gout) top of foot Bone, outside of foot and orotund the back of heel to the bottom of heel. It’s just messed up from walking like I have been for about 3 years now. My MC has been getting worse ( but medical papers on MC says it’s not suppose to) Go figure I would go against medical document 😂😂
@kimcvi Please write to the authors of those "Medical Papers" they should be researching every outlier to their conclusions.. and I bet they will write back asking for your tests..etc.. Ken
Hi Ken, I am not sure how they come up on these results as it is rare and even people who have other diseases the disease hit everyone differently so to tell me it’s not suppose to get worse is really frustrating. My EMG test say I’m not faking it but the papers tell me that I’m not worse. So frustrating. My Neurologist does tell me that my MC can get worse and he says he believes me as EMG’ don’t lie. 😊 I am grateful that I have him on my side. He is just curious on how to fix my foot. I told him the first time I met him that I was a Freak and I stated that to him again last week. He tells me no I am not and we will figure it out. They are so caring at the Mayo I just wish ALL medical facilities worked like they do and not give up on their patience.
Hi Hank, no your questions are fine. MC effects both sides not just one. My foot is normal just can’t bear weight on the heel as I walk a lot on my toes due to stiffness in my legs when I start walking or do too much walking. They think there’s a possibility my tendons might have shortened. I have not tried myofacial release as no one suggested it. I will bring this up to the doctors. Thank you for the suggestion. Never feel bad about asking too many questions that is how we learn and show that we care as I can tell by all your comments on all the groups you care. I thank you for that also. 😊
@kimcvi
It seems like myofascial release (MFR) is "the new thing" nowadays in message therapy. Someone on Connect is talking about it practically every day. And many people are getting MFR treatments now. It seems like one issue for many is finding a practitioner that actually understands how to perform it correctly. If you do seek it out, be careful to find out what the background and experience level is of the person doing it. Unless they sound very competent in it I would move on until I found someone that did. Because MC is so muscle oriented I would think MFR has a better chance of being helpful to you. Hank
I will discuss this with my doctor, it really sounds like a good solution. I know that I have asked him about injections and some other kind of treatment ( can’t think of it off hand) but he indicated that those wouldn’t work for this. At that time he didn’t hear or read about anything that works yet. Right now he is lowering my Gabapentin as this is not working for my pain. I was taking 800 mg 2 x a day and 1200mg at night. He is trying to find something to keep the pain level down. 🤞🤞
@kimcvi
It seems like myofascial release (MFR) is "the new thing" nowadays in message therapy. Someone on Connect is talking about it practically every day. And many people are getting MFR treatments now. It seems like one issue for many is finding a practitioner that actually understands how to perform it correctly. If you do seek it out, be careful to find out what the background and experience level is of the person doing it. Unless they sound very competent in it I would move on until I found someone that did. Because MC is so muscle oriented I would think MFR has a better chance of being helpful to you. Hank
I second your comments about researching. I was fortunate to find a well qualified MFR therapist in COLORADO. she worked wonders following a whip lash accident. Couldn’t move my neck and shoulders. She was trained by John?? In AZ. Apparently his people are taught how to do MFR therapy. It took a whole year for my neck to finally release.
I second your comments about researching. I was fortunate to find a well qualified MFR therapist in COLORADO. she worked wonders following a whip lash accident. Couldn’t move my neck and shoulders. She was trained by John?? In AZ. Apparently his people are taught how to do MFR therapy. It took a whole year for my neck to finally release.
@catstx - John F. Barnes, PT, LMT, NCTMB is an internationally recognized physical therapist, lecturer, author, and the leading authority on Myofascial Release. Here's his website - https://www.myofascialrelease.com/. There is also a discussion on Connect you may want to follow here:
Thank you Hank. Everyone here is so nice and helpful and always giving out suggestions not demanding like some people. I haven’t told a lot of people about me that I know because all of a sudden they become your doctor. They don’t ask me about it, they would ask me what’s wrong with my leg and why I am walking funny, I would respond oh I have Myotonia Congenita, then instead of saying what is that, they would say You should try this or take this Vitamin. 😡😡 So when I started on Mayo Connect you all gave the correct answer I haven’t heard of that what is it? Thank you all for that and Thank you all for giving me “have you tried this” not telling me to try it.
Thank you again and sorry for venting but everyone here is a breath of fresh air💕 I am CHEERING EVERYONE on may you ALL find Answers and Healing🤞💕
Kim
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I have multiple issues going on with my foot and ankle, plantar fasciitis is also one of the main problems. My Achilles big toe joint(no bunion or gout) top of foot Bone, outside of foot and orotund the back of heel to the bottom of heel. It’s just messed up from walking like I have been for about 3 years now. My MC has been getting worse ( but medical papers on MC says it’s not suppose to) Go figure I would go against medical document 😂😂
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2 Reactions@kimcvi Please write to the authors of those "Medical Papers" they should be researching every outlier to their conclusions.. and I bet they will write back asking for your tests..etc.. Ken
Hi Ken, I am not sure how they come up on these results as it is rare and even people who have other diseases the disease hit everyone differently so to tell me it’s not suppose to get worse is really frustrating. My EMG test say I’m not faking it but the papers tell me that I’m not worse. So frustrating. My Neurologist does tell me that my MC can get worse and he says he believes me as EMG’ don’t lie. 😊 I am grateful that I have him on my side. He is just curious on how to fix my foot. I told him the first time I met him that I was a Freak and I stated that to him again last week. He tells me no I am not and we will figure it out. They are so caring at the Mayo I just wish ALL medical facilities worked like they do and not give up on their patience.
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Helpful -
Hug
2 Reactions@kimcvi
It seems like myofascial release (MFR) is "the new thing" nowadays in message therapy. Someone on Connect is talking about it practically every day. And many people are getting MFR treatments now. It seems like one issue for many is finding a practitioner that actually understands how to perform it correctly. If you do seek it out, be careful to find out what the background and experience level is of the person doing it. Unless they sound very competent in it I would move on until I found someone that did. Because MC is so muscle oriented I would think MFR has a better chance of being helpful to you. Hank
I will discuss this with my doctor, it really sounds like a good solution. I know that I have asked him about injections and some other kind of treatment ( can’t think of it off hand) but he indicated that those wouldn’t work for this. At that time he didn’t hear or read about anything that works yet. Right now he is lowering my Gabapentin as this is not working for my pain. I was taking 800 mg 2 x a day and 1200mg at night. He is trying to find something to keep the pain level down. 🤞🤞
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Like -
Helpful -
Hug
1 ReactionI second your comments about researching. I was fortunate to find a well qualified MFR therapist in COLORADO. she worked wonders following a whip lash accident. Couldn’t move my neck and shoulders. She was trained by John?? In AZ. Apparently his people are taught how to do MFR therapy. It took a whole year for my neck to finally release.
@catstx - John F. Barnes, PT, LMT, NCTMB is an internationally recognized physical therapist, lecturer, author, and the leading authority on Myofascial Release. Here's his website - https://www.myofascialrelease.com/. There is also a discussion on Connect you may want to follow here:
Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
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2 ReactionsThank you, I will read this information and look into the group suggested. God Bless
Kim
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2 Reactions@kimcvi
Hang in there Kim. You are doing all the right things for yourself. God will steer you along I am sure. Best, Hank
Thank you Hank. Everyone here is so nice and helpful and always giving out suggestions not demanding like some people. I haven’t told a lot of people about me that I know because all of a sudden they become your doctor. They don’t ask me about it, they would ask me what’s wrong with my leg and why I am walking funny, I would respond oh I have Myotonia Congenita, then instead of saying what is that, they would say You should try this or take this Vitamin. 😡😡 So when I started on Mayo Connect you all gave the correct answer I haven’t heard of that what is it? Thank you all for that and Thank you all for giving me “have you tried this” not telling me to try it.
Thank you again and sorry for venting but everyone here is a breath of fresh air💕 I am CHEERING EVERYONE on may you ALL find Answers and Healing🤞💕
Kim
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Like -
Helpful -
Hug
2 Reactions