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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

Hi Hank, no your questions are fine. MC effects both sides not just one. My foot is normal just can’t bear weight on the heel as I walk a lot on my toes due to stiffness in my legs when I start walking or do too much walking. They think there’s a possibility my tendons might have shortened. I have not tried myofacial release as no one suggested it. I will bring this up to the doctors. Thank you for the suggestion. Never feel bad about asking too many questions that is how we learn and show that we care as I can tell by all your comments on all the groups you care. I thank you for that also. 😊

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Replies to "Hi Hank, no your questions are fine. MC effects both sides not just one. My foot..."

Hi @kimcvi - You mentioned walking on your toes due to stiffness in your legs and you can't bear weight on your heels when walking. Do you have pain in the heels if you try to walk normally? Just wondering if it might be related to plantar fasciitis since that is one of the most common causes for heel pain. There is another discussion here that might interest you if it's a possible cause of your symptoms.

Plantar Fasciitis: https://connect.mayoclinic.org/discussion/plantar-fasciitis-1/

@kimcvi
It seems like myofascial release (MFR) is "the new thing" nowadays in message therapy. Someone on Connect is talking about it practically every day. And many people are getting MFR treatments now. It seems like one issue for many is finding a practitioner that actually understands how to perform it correctly. If you do seek it out, be careful to find out what the background and experience level is of the person doing it. Unless they sound very competent in it I would move on until I found someone that did. Because MC is so muscle oriented I would think MFR has a better chance of being helpful to you. Hank