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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

Hello Everyone, just been at the Mayo and more questions than answers 😡 sorry to burden everyone but I just feel frustrated. I came home from the Mayo with I don’t know why are what is causing your pain or the malfunction in your foot. I just get tired of I see there is something but I don’t know what. It is making me feel like that is what doctors say when they don’t believe you. I wish the could literally walk in my feet, legs and use my hands! Not that I want anything wrong but my husband goes to the doctor with some kind of pain and presto he is fixed. I just needed the venting as My words don’t come out verbally for anyone to understand what my point is. Hope everyone is staying safe and Thank you again for letting me vent
Kim

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Replies to "Hello Everyone, just been at the Mayo and more questions than answers 😡 sorry to burden..."

@kimcvi
Hi Kim, did you see the neurologist that you had been communicating with these past several months there at Mayo? You had mentioned him as someone who seemed to understand your case. What did he say specifically? Did you see other doctors, and of which specialties were they? I am surprised at their reaction to you. Did they perform any tests, and which tests were they? Did they suggest any treatment ideas? Was there any plan for follow up appointments or anything else? Forgive the barrage of questions. Feel free to answer or don't answer any that you care to. I'm just so curious at how you were handled there at Mayo. Best, Hank