Replies to Hello Hank, I didn’t see my response to what you wrote so if I’m repeating myself…

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Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

Hello Hank, I didn’t see my response to what you wrote so if I’m repeating myself sorry. I really appreciate your read. I am also grateful for this chat place. I have just came back from the Mayo and I will be going back for extensive testing. I think I got them baffled😂 I am grateful for them as they are not pushing me aside, they seem concerned and wanting to find out what’s going on. My doctors here just throw up their hands and chalk everything to my MC. I don’t go to church as I believe it should be more of a spiritual gathering then how much money I give. I try to stay happy and keep going as I do Love Life but sometimes it’s just too much and I have a me moment.
Thank you so much for listening it really does help
Kim🥰

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Replies to "Hello Hank, I didn’t see my response to what you wrote so if I’m repeating myself..."

Hank | @jesfactsmon | Dec 13, 2020

@kimcvi
Kim, sorry I missed your first response. Maybe the text got lost, that seems to happen occasionally on computers or phones. If there was anything important in your first attempt that you did not say again in the second, please let me know.

Also, I want to say that for a family member to respond to a question about possible diseases in the family by saying it is none of your business sure sounds like an odd response.

And finally, in response to your comment about going to church, I can tell you definitively that in order to establish a spiritual relationship with God you absolutely do not need a church. I am sure mankind has been reaching out to a higher power since long before churches ever existed. But you are also very lucky to have loving kids and a loving spouse. It's also great that the Mayo folks are hanging in there throughout this whole mystery of your health issues. I am happy to know that you are at least not alone in this.

Please take good care. And do keep talking with everyone here, regardless of MC being so rare. Even though it is not exactly what others have, there are people with similar problems. Remember Casey @chamiltonatc who had "diffuse myotonia" ? Also, another person just today described having dystonia, which sounded somewhat similar to MC. You may want to check her out by clicking here @daphne47 and reading her posts. Wishing you all the best Kim, Hank

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