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kimcvi (@kimcvi)

Myotonia Congenita

Neuropathy | Last Active: Jan 27 6:19pm | Replies (151)

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HI 🙂 My EMG showed "diffuse myotonia" and my neurologist said that he did not see any issue with my nerves that would be causing my sensory issues. I will have the results from my genetic testing in about 5 weeks, so I guess I'm just waiting until then to determine my next move on this journey, but I feel like having a community, especially someone with potentially a similar diagnosis will make this easier! I currently take Cymbalta for my leg pain, it just started it a few months ago, it has helped but I have noticed that with the recent change in weather my symptoms are worsening, especially my pain. Please feel free to reach out to me at anytime! It is so nice to know that I am not alone! Even if we don't end up having the same diagnosis, it is nice to know someone out there has similar symptoms!

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Replies to "HI :) My EMG showed "diffuse myotonia" and my neurologist said that he did not see..."

@chamiltonatc @kimcvi
Casey, Kim, I am glad you two have managed to connect with each other. Hope you can be buddies for each other going through this awful ordeal which you each are facing. I'm interested to find out the results of the genetic testing Casey. Best to both of you! Hank

Hello @chamiltonatc,

I noticed that you last posted a year ago regarding problems with sensory issues. How are you doing? Are you still taking the Cymbalta for the pain?

I would enjoy hearing from you when you have time to post an update.