← Return to Myotonia Congenita
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Replies to "Yes I have tried mexiletine and I am allergic to it. I take a muscle relaxer..."
Well duh, of course you have tried mexiletine. If I thought I was going to find out anything about MC and it's treatments in only 2 hours that you didn't already know having had this your whole life I think I'd be pretty silly (and perhaps I am a bit). I just appreciate your sincerity, and I sensed your feeling of isolation from others with your illness, much like Brenna in the video. If nothing else I am eager to be of help if I can but I guess you're on your own. Did you connect with the MC facebook group Brenna mentioned (assuming you are on fb)? Again I assume you've explored that already. Good luck in any case Kim, you've always got some sympathetic ears here, if nothing else. Best, Hank
@kimcvi I'm so glad to hear your Dr,s nurses aren't giving up I hope and pray for you and will put you on my prayer group if you want. There where good information from Brenna have you been able to look at her site? We are here for you if you need to vent this forum is a good forum to do that everyone no on pain needs to vent at times bless you for your strength the Lord provides when we can't
Well, this warms my heart. To know you have good support with your Drs. is soooo important. I'm glad they are fighting for you. Good luck with continued genetic testing. Fingers are crossed Drs. can narrow down your diagnosis. 🤞🏻