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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@kimcvi

I am 54 and found out about this 3 years ago when my doctor finally said you need to go to the Mayo. I knew about it at a young age, my parents said it was growing pains. I don’t fault them at all due to no one in the USA knew about this disease til about 2000.

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Replies to "I am 54 and found out about this 3 years ago when my doctor finally said..."

Kim, just curious, did you ever take mexiletine, which Brenna in the video says she takes for MC? Apparently at least at the time of the video she sounded like she had found an answer, at least one she preferred to living with the disease symptoms, in this drug.

@kimcvi Ah, I see. It's very interesting about childhood and the diagnosis. I'm sorry. Hank already asked about Mexiletine, spoke about in the video attachment. Does any medication currently bring you relief? Are you able to or have you gone to physical therapy, received myofascial release, as @jenniferhunter brings up? I benefit from MFR as well and recommend it.