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Myotonia Congenita

Neuropathy | Last Active: Nov 8, 2025 | Replies (157)
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@kimcvi I researched MC earlier and got the low down. I'm curious, if you dont mind sharing, your age and how long you've been fighting this horid disease?

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kimcvi | @kimcvi | Jul 30, 2020

I am 54 and found out about this 3 years ago when my doctor finally said you need to go to the Mayo. I knew about it at a young age, my parents said it was growing pains. I don’t fault them at all due to no one in the USA knew about this disease til about 2000.

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