Thank you all for the wonderful responses, I know not to give up as “CAN’T” has not ever been in my vocabulary, when someone’s tells me “I can’t”, I prove to them that I can 🙂 also “With Faith it may not be easy but it is Possible”. I know I have so many quotes that I say to myself just to get through the day. Maybe some of my quotes will help you.
As for Myotonia Congenita it is a mutation in the muscle that makes it hard to walk or shake hands. If you google fainting goats that is what happens. Your muscle contact and stiffen up so you kind of either fall on your face or end up walking like Frankenstein. I use AFO’s as this disease is starting to shorten my tendons in the calves due to walking in my tip toes when my legs don’t bend. On my worst days my muscles fight against me it’s like trying to put two magnets together opposite of each other. That’s the best description I have and that seems to help my doctors try to understand what I am feeling and fighting.