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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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Hi @avmcbellar in addition to RALA Linda and I take a number of things to help boost our mitochondria, which as you probably know, are prevalent throughout your body (literally in the trillions) and are responsible for the body's energy production. One of these is Acetyl L Carnitine (ALC). We take 2 500mg caps together each day with food. We take the RALA 15-30 minutes before this because it is supposed to aid the ALC. What I found out the ALC does is it helps your mitochondria burn fat and create more energy — especially for your muscles and brain. ALC has two main benefits: It shuttles fuel (in the form of fatty acids) to your muscle mitochondria, which ramps up your energy production and can increase endurance, and it also boosts brain power. If you google "r lipoic acid and acetyl l carnitine" you will find a number of articles which discuss the benefits of taking these 2 in conjunction with one another. The reason we take the two 500mg pills together is that I read (and this is purely from memory from a year ago) that your digestive system's enzymatic action will counter it to some extent so you need to take enough to still be effective, hence the 1000mg all at once and not divided into a 500mg dose twice a day. Best, Hank

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Replies to "Hi @avmcbellar in addition to RALA Linda and I take a number of things to help..."

@avmcbellar It just hit me that for you to need to take your RALA with food means you would not be able to take it as we do, on an empty stomach 15-30 minutes before eating. But perhaps it's not the big a deal to take the RALA and ALC at the same time with food. Not really sure.

@jesfactsmon Hi Hank, thank you for the advice. I am grateful for being able to take the ALA for now. Perhaps later on an empty stomach. Before my AVM I had graduated to taking the highest dose available for cayenne pepper capsules. No upset stomach when taken as directed with food. My husband tried but couldn’t tolerate it. So I became determined in finding a way to take the ALA. With the ALC I plan on a total daily dosage of 1000mg. Thanks for the dosage information you and your wife take for the ALA and ALC. It is very helpful. I will figure what will be easier on my stomach. Did you and Linda see a significant difference with the neuropathy pain?