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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@richman54660

@avmcbellar I am not on the protocol but I'd devised something similar based on research (I do not go so high on the B-vitamins). I get my healthy fats from diet as well as 1 tblsp of hempseed oil (which is all fat). I do take carnitine. I take 500 mg per day. I did not notice a decrease in pain that I would specifically attribute to that, but then again, I don't know for sure. I tend to have high triglyerides so more carnitine might help burn fats and lower triglycerides (and when you take ALA it is a fat; the center molecule at the fat burning cycle is carnitine). A small amount of carnitine (500 mg - 1000 mg) should be well tolerated. Carnitine can be metabloized to TMAO which, at higher levels, may not be good. However, that whole issue is complicated by way of some gut bacteria lower TMAO and some raise it. But, like I said, small amounts of carnitine might be helpful - especially if you don't eat much red meat (carnitine is and amino acid - but it is not one of the 20 common amino acids found in proteins - so vegetarians, in paricular might need a supplement. I used nutricost brand from Amazon. I also take turmeric, other flaviniods (especially in green powder supplements) and extra vitamin C, too.

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Replies to "@avmcbellar I am not on the protocol but I'd devised something similar based on research (I..."

Hi @richman54660 thank you for the information. I know our bodies turn L-Carnitine into Acetyl L-Carnitine. Vegetarians or vegans do have a much lower amounts in their bodies. Since alpha lipoic acid improved my neuropathy and energy level, I am hoping with the combination of the two I will see an even greater improvement. Thanks again. Glad turmeric is helping. Summer time is always more difficult for people with muscle weakness or neuropathy because of the heat. Our bodies can’t deal with the heat because of the misread messages our brain receives. So in the mean time, we have to figure out what to do in order to get through it.