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Myotonia Congenita

Neuropathy | Last Active: Jun 17, 2023 | Replies (154)

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@avmcbellar

@johnbishop, @jesfactsmon Hi, I have tried taking the alpha lipoic acid(ALA) in different ways to decrease my upset stomach. I found by eating food first then taking a 600mg capsule with more food decreased the degree of my upset stomach to almost zero. It is much more tolerable. In the future I may try a 300mg capsule twice a day. I saw online a recommendation of 600mg daily helped with neuropathy for diabetics. Although I am not a diabetic, I know 600mg daily provided benefits for me. I also read Acetyl L-Carnitine Amino Acid can provide relief from nerve pain. Has anyone tried the ALCA acid? I was concerned for a vegetarian diet but supplements are available. Apparently some dairy foods contain small amounts of ALCA.

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Replies to "@johnbishop, @jesfactsmon Hi, I have tried taking the alpha lipoic acid(ALA) in different ways to decrease..."

@avmcbellar I am not on the protocol but I'd devised something similar based on research (I do not go so high on the B-vitamins). I get my healthy fats from diet as well as 1 tblsp of hempseed oil (which is all fat). I do take carnitine. I take 500 mg per day. I did not notice a decrease in pain that I would specifically attribute to that, but then again, I don't know for sure. I tend to have high triglyerides so more carnitine might help burn fats and lower triglycerides (and when you take ALA it is a fat; the center molecule at the fat burning cycle is carnitine). A small amount of carnitine (500 mg - 1000 mg) should be well tolerated. Carnitine can be metabloized to TMAO which, at higher levels, may not be good. However, that whole issue is complicated by way of some gut bacteria lower TMAO and some raise it. But, like I said, small amounts of carnitine might be helpful - especially if you don't eat much red meat (carnitine is and amino acid - but it is not one of the 20 common amino acids found in proteins - so vegetarians, in paricular might need a supplement. I used nutricost brand from Amazon. I also take turmeric, other flaviniods (especially in green powder supplements) and extra vitamin C, too.

@avmcbellar, Acetyl L-Carnitine is part of the 525 Protocol product that I take (500 mg X 2 daily). Here is an article that provides a little more information on ALC.

The Therapeutic Effects of Acetyl-L-Carnitine on Peripheral Neuropathy: A Review of the Literature: https://www.naturalmedicinejournal.com/journal/2010-08/therapeutic-effects-acetyl-l-carnitine-peripheral-neuropathy-review-literature/

Hi @avmcbellar in addition to RALA Linda and I take a number of things to help boost our mitochondria, which as you probably know, are prevalent throughout your body (literally in the trillions) and are responsible for the body's energy production. One of these is Acetyl L Carnitine (ALC). We take 2 500mg caps together each day with food. We take the RALA 15-30 minutes before this because it is supposed to aid the ALC. What I found out the ALC does is it helps your mitochondria burn fat and create more energy — especially for your muscles and brain. ALC has two main benefits: It shuttles fuel (in the form of fatty acids) to your muscle mitochondria, which ramps up your energy production and can increase endurance, and it also boosts brain power. If you google "r lipoic acid and acetyl l carnitine" you will find a number of articles which discuss the benefits of taking these 2 in conjunction with one another. The reason we take the two 500mg pills together is that I read (and this is purely from memory from a year ago) that your digestive system's enzymatic action will counter it to some extent so you need to take enough to still be effective, hence the 1000mg all at once and not divided into a 500mg dose twice a day. Best, Hank