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Myotonia Congenita

Neuropathy | Last Active: Nov 8, 2025 | Replies (157)

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Profile picture for Rachel, Volunteer Mentor @rwinney

No evidence that surgery can help. I've had enough surgeries on my eyes therefore it would be my very last resort. Cornea transplants most likely will need to be in my future again also.

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Replies to "No evidence that surgery can help. I've had enough surgeries on my eyes therefore it would..."

Really? Ugh! 😒

Well, you tried with getting another opinion and now you know with more certainty. Just keep looking for new and improved developments. You never know with breakthroughs. You have had good luck with the cornea transplants lasting longer. Maybe advancements have been made with the transplants since you had the surgery.