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kimcvi (@kimcvi)

Myotonia Congenita

Neuropathy | Last Active: Nov 1 7:19am | Replies (149)

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@rwinney

Looks like you might be a trailblazer Kim! Starting a thread on Connect may eventually payoff as people from all over the world tune in. Good luck and yes, I'm here if you you need to vent, cry, rejoice or just chat. Wishing you a tolerable day. 😊
Rachel

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Replies to "Looks like you might be a trailblazer Kim! Starting a thread on Connect may eventually payoff..."

Hi Rachel @rwinney. I have discovered, at least for me, the increased strain on my eyes is due to my muscle weakness and neuropathy. I had started taking an alpha lipoic acid(ALA) supplement. After a couple of months I stopped taking it when I figured out it was causing my stomach and esophagus burn. Since I stopped I learned that it was the supplement that improved my energy. I believe it is the ALA that helps the body better utilize the glucose for energy. I had noticed an increase in burning pain from my neuropathy, a decrease in energy, and an increase in eye strain. My photobia remained unchanged for now. I just need to figure out how to take the supplement for its benefits without the side effects. I have emailed the manufacturer for advice and waiting for their response. Hope you find this helpful for your health.