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kimcvi (@kimcvi)

Myotonia Congenita

Neuropathy | Last Active: Nov 1 7:19am | Replies (149)

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@kimcvi

Thank you Rachel, the people at the Mayo has been a lifesaver for me. They are very understanding that I do not have no one in the medical field to talk to except them. They were more than happy to acknowledge any questions or concerns that I have and very quick to respond. I have search all over the internet for a support group regarding this disease but there is nothing. I was excited to see that the Mayo has started this and I am hoping to not feel alone even though I have not found anyone with this disease. It’s nice to know that there are people that can understand to some point on what you are going through.
Thank you and hope to chat with you again soon.

Kim

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Replies to "Thank you Rachel, the people at the Mayo has been a lifesaver for me. They are..."

Looks like you might be a trailblazer Kim! Starting a thread on Connect may eventually payoff as people from all over the world tune in. Good luck and yes, I'm here if you you need to vent, cry, rejoice or just chat. Wishing you a tolerable day. 😊
Rachel