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kimcvi (@kimcvi)

Myotonia Congenita

Neuropathy | Last Active: Nov 1 7:19am | Replies (149)

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@jesfactsmon

@kimcvi I had never heard of this before you started this discussion. I am curious, what kind of pain do you experience with MC? It sounds like the muscles become stiff because they don't naturally relax. Do you have pain similar to what most people have with a charley horse, or maybe due to MC you have never experienced a charley horse? A website I was reading said some people experience mild symptoms. Is your particular case a more severe one? Hope you find answers here. Best Hank

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Replies to "@kimcvi I had never heard of this before you started this discussion. I am curious, what..."

Hello, yes it’s like a Charlie horse. MC is not suppose cause much pain and it’s suppose to be relieved with walking or exercising but the more I do the harder my muscles work and I have pain. My foot is all messed up due to the MC and if I do any substantial walking I wear AFO’s. I was hoping to connect with someone who is going through this but it is rare and none of my Dr.’s here at home can help me, I do a lot of non urgent messaging to my Dr. at the Mayo (he is Awesome along with his nurse)