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stephg (@stephg)

Eosinophilic Fasciitis?

Autoimmune Diseases | Last Active: Aug 17, 2020 | Replies (13)

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@johnbishop

Hello @stephg, Welcome to Mayo Clinic Connect. I was unable to find any posts on Connect for Eosinophilic Fasciitis but that doesn't mean there aren't members out there with the condition. I know it can be hard not having all the answers but it's great to see that you are reaching out and learning as much as you can by being your own best advocate.

I did find a patient story from Sharing Mayo Clinic that talks about Eosinophilic Fasciitis that you might find helpful.
Back to Nature After Specialized Care for a Disabling Condition: https://sharing.mayoclinic.org/2018/02/08/back-to-nature-after-specialized-care-for-a-disabling-condition/

You might also find the following discussion helpful – Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

Do you already have your appointment scheduled with Mayo Clinic?

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Replies to "Hello @stephg, Welcome to Mayo Clinic Connect. I was unable to find any posts on Connect..."

Thank you for responding! I did see the Back to Nature article online and felt encouraged to reach out to Mayo since EF is my best guess. CFS is an interesting thought- I do have some of those symptoms, but haven’t seen much online about CFS skin issues like I have.

I do not yet have an appointment…

Thank you!

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