Hello @stephg, Welcome to Mayo Clinic Connect. I was unable to find any posts on Connect for Eosinophilic Fasciitis but that doesn't mean there aren't members out there with the condition. I know it can be hard not having all the answers but it's great to see that you are reaching out and learning as much as you can by being your own best advocate.

I did find a patient story from Sharing Mayo Clinic that talks about Eosinophilic Fasciitis that you might find helpful.
Back to Nature After Specialized Care for a Disabling Condition: https://sharing.mayoclinic.org/2018/02/08/back-to-nature-after-specialized-care-for-a-disabling-condition/

You might also find the following discussion helpful - Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments: https://connect.mayoclinic.org/discussion/myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments/

Do you already have your appointment scheduled with Mayo Clinic?