My husband, Bruce, decided to get tested to see if he can be accepted into the trial. Mayo is only accepting 4 people so after tests on the 10th we will find out in a few weeks. Of the 4 chosen only 2 will get the drug. Everyone will get bcg but only 2 will get bcg and the drug . The side effects can be bad as this will rev up his immune system and can cause the body to attack organs. So there is a risk to doing this but without it there is no cure.
I have great friends that are very supportive but this is scary and sometimes I just go hide in a room and cry.
I wish doctors would run urine tests as a preventative test as maybe bladder cancer could be caught early. They run tests for prostate cancer but no one mentions bladder cancer.
Do feel good that Bruces doctor at Mayo is looking at all options and he is a surgeon. Bladder removal is our last option as Bruce has a horse shoe kidney and I have heard and doctor confirmed that after bladder removal it can come back in kidney so that is not a cure. Thanks for reaching out. We are all learning together