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Should 4+ Pseudomonas be treated?
MAC & Bronchiectasis | Last Active: Jun 24 7:41am | Replies (115)Comment receiving replies
windwalker No, I've not heard of it nor has it been mentioned but I was just reading your first post and "saved" it because I plan to ask Mayos in Rochester about it. Thanks so much for sharing that bit. You are still alternating toby and the antibiotic, right? I have difficulty breathing after a few days of toby. So now, I've been given two more meds to nebulize for that problem. Yupelri and Perforomist . Have started those and have broken out with a rash -- so have now stopped them. Will try again after rash is totally gone -- just to see if that is indeed the problem. Goodness..... it is always something.
Replies to "windwalker No, I've not heard of it nor has it been mentioned but I was just..."
You know, I began to have trouble on the toby too. It would get kinda bad after two weeks on it, then I would press on and be so much better after the 28 days. I would always say to myself, it's going to get bad before it gets better. It would depend on how severe your symptoms are on whether I recommend staying on it. My symptoms were mainly uncomfortable, like lungs feeling very wet and congested.
I had read about the glatiramer acetate (copaxone) on a Cystic Fibrosis site. It may only work on genetic CF patients. I know I have posted the article in the past. Will try to find it again for you.
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I am so sorry you continue to have such difficulties with treating that darn pseudo. Had you been using albuterol to open your airways prior to doing the toby?