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Best not always the best: Finding the right epilepsy specialist for u
Epilepsy & Seizures | Last Active: Jul 8, 2020 | Replies (9)Comment receiving replies
@lsittll, Great topic. I expanded the title to reflect the discussion. Finding the right specialist for YOU certainly goes beyond reading reviews. With a chronic condition like epilepsy, you're working with someone as a team. You want that team member to work with you, to provide medical expertise, but also to respect and consider your experience and your expertise about you.
You might appreciate some of the tips members have shared in these related discussions:
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/
- How to evaluate a cancer doctor? https://connect.mayoclinic.org/discussion/how-to-evaluate-a-doctor/
I'd like to also bring @lynette1975 @gimmegum @jakedduck1 @mxyzptlk32 @possumm @fbutterw20 @ehowey18 @crstyday40 @patrassi @jktaheri) and others into this discussion.
@lsittll, why don't you kick us off. What do you look for in a doctor? What is important for you to be able to trust in the care you get? What traits do you value?
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@colleenyoung I find that having a doctor who deals with your seizures as a team is important.
I saw a doctor for the first time. I just switched from Johns Hopkins University to University of Maryland Medical Center. She was discontinuing vigabatrin. I mentioned switching to Dilantin because it was successful earlier but she said no that affected your liver..
I said that I get a strange feeling with my seizures that makes me feel like I am causing the things. She tried to set up EEG monitoring to check to see if I was indeed having seizures. She knew I had an established history of epilepsy. If she had consulted with other doctors on the team my doctor would have told her that patients with psychomotor seizures feel a sensation like that, a deja'vu feeling before their seizures. She told me this when I asked her the same thing. Last time I saw that doctor!