To my knowledge he still hasn’t made the decision to place referral request but we have an appt in October so we will be very strongly demanding a referral or we will be removing our son from his care if I’m able to have his PCP do a referral to Mayo for us. I’m not sure if a referral is even needed but I’d rather have that along with clinic to clinic transfer of all medical records and test. It is a very long distance to Mayo and I’m not even sure my son can handle that even over the course of a day or two but they are literally our last chance of hope and not simply from a medical standpoint but our sons mental status as well. Depression and frustration of losing all of your abilities while fighting with your own body has really taken a toll on him.

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