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Adult Progressive Myoclonic Epilepsy
Epilepsy & Seizures | Last Active: Nov 26, 2020 | Replies (34)Comment receiving replies
@possumm
Good morning,
Have your sons seizures ever been controlled at all? This syndrome is difficult at best to treat sometimes successful for a while and then back to seizures. Your sons situation sounds extreme which I’m sorry to hear about. I know it may seem overly optimistic but we never know if or when seizures may stop. Does your son have any lesions or other abnormalities?
Has he ever had brain surgery, if so was it helpful at least for a while?
Take care,
Jake
Replies to "@possumm Good morning, Have your sons seizures ever been controlled at all? This syndrome is difficult..."
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My sons seizures have never been controlled since onset and at the age of 9 or 10 we were told the MRI showed two tumors on the left frontal lobe so it was repeated to confirm but turned out the tech had done something incorrectly and no tumors were found or any other abnormality. He was never a candidate for brain surgery which the chief pediatric surgeon was hoping would be an option but due to his entire brain being involved this wasn’t even a possibility.