Connect
← Return to Adult Progressive Myoclonic Epilepsy
Discussion
Adult Progressive Myoclonic Epilepsy
Epilepsy & Seizures | Last Active: Nov 26, 2020 | Replies (34)Comment receiving replies
Hello @possumm and welcome to Mayo Connect. You certainly have been diligent in seeking help for your son. He has a strong advocates in his corner and that is great! I see that that this is your second post on Mayo Connect and I can certainly understand your concern. I am glad to know that your son will be referred to the Mayo Clinic. They have a renowned epilepsy team and perhaps you will find some answers there.
Do you have an appointment scheduled at Mayo yet?
Replies to "Hello @possumm and welcome to Mayo Connect. You certainly have been diligent in seeking help for..."
Connect
No ma’am he has to have a VNS checkup on July 13 and once that’s complete the epileptologist said he will be setting us up with Mayo but he also mentioned Cleveland Clinic if Mayo was unable to see us pretty fast. We aren’t entertaining Cleveland because that trip would definitely put more risk on our son since we would be driving. We want answers regardless of the future but we refuse to risk his life to get a possible diagnosis. My husband and I aren’t easily trustful of doctors after all the misdiagnosis over the years that led to a lot of problems for our son.