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Mac + lung cavity

MAC & Bronchiectasis | Last Active: Mar 3 9:50pm | Replies (128)

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I would be on the phone immediately to contact Mayo or National Jewish for an appt. Your doctor is correct, MAC is hard to get rid of and yes the antibiotic can be very hard on you. That said, it took me over a year of going to different doctors (primary, GI, ENT and local pulmonary doc) and even paying out of pocket to get a CT of my chest to see what was going on in my body. The pulmonary doc did a bronchoscopy and I got the diagnosis of bronchiectasis, MAC and Pseudomonas. He hit me with the 3 heavy antibiotics and I felt I was slowly dying. I found this group and a member sent me the name and info on a doctor 3 1/2 hrs away. I contacted his office and with was able to get an appt. within a couple of weeks. My next option would have been Mayo--either Rochester, MN or Jacksonville, FL. The doctor I saw finally said I probably should never have been put on medication. He also started me nebulizing--that day. I had to undergo some IV antibiotic treatment for a tough (3 strains) of Pseudomonas. It still flares it's nasty head and I'm currently positive but only one strain. I asked if I could increase my nebulizing from 3% Sodium Chloride to 7% and he accommodated my request. Currently I'm not on any medication but do nebulizing once a day. I feel well and do what I can to stay that way. Thank you God the Father.

How long have you been diagnosed? What is the qualification of your doctor--is he a specialist? I learned a long time ago that knowledge is power. Your reaching out to this group is probably the best thing you could do. Everyone here is ready and willing to help you with questions you have. Now, get busy and find your super hero doctor. They're out there.

Pray God will be with you in your endeavours.

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Replies to "I would be on the phone immediately to contact Mayo or National Jewish for an appt...."

Thank you for your reply. I have been diagnosed with Mac but have no idea what it cultured out to be exactly. I have an appointment with my pulmonary Dr. but not until October. I hope to have answers before that! Jan