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Unresolved Colon/Appendix Issues and Spinal Epidural Lipomatosis (SEL)
Colorectal Cancer | Last Active: Oct 15, 2021 | Replies (27)Comment receiving replies
You need to get/TELL your current doctor you WANT a referral to Mayo done NOW. That’s the only way you will likely get an appt there is what I’m thinking. Having said that, not sure of how soon that would be. But you need to stand firm and advocate for what you want, otherwise sounds like you aren’t getting anyone else to do it for you. Bottom line. Be your own advocate, even if you have to stomp your foot!
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I just tried with new surgeon and after new catscan which revealed -0- he wants yet another colonoscopy for biopsy on “ thickening in cecum concerning of malignancy that catscan didn’t even reveal!!! I told him that 3 colonoscopies and 3 catscans in 12/18 mo. Is enough!! No more!! And the “ thickening in cecum was found by catscan NOT colonoscopy and 2 precancerous polyps in appendeceal orifice are still there! All such inconsistent findings. I wanted at least to be referred to uTSW cancer center since mayo won’t take me for appt!! Unless I ‘have’ diagnosis if cancer! I’m so stressed!
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That’s what I’ve tried to do. This new surgeon won’t even refer me to the Cancer Center at UTSW making me go thru my ‘new’ primary! Who doesn’t seem to get the whole picture! I’m at a loss.. I’ve called Mayo 3X, and they say they will only see me “if I have cancer”!!