Thank you again.. I went to a group of general surgeons ref. By my primary.. he didn’t give me any help ref. Me to gastroenterologist. But I changed primaries back to UTSW and ref. To another Colon rectal Surgeon... ordered another Catscan which literally showed nothing if previous Catscan... now I’m challenging it with another in person visit w/this surgeon.i don’t think lipomatosis is being targeted as I was told by 3 spine surgeons at UTSW they do not do surgery on Lipomatosis! Same language used by my old surgeon re:original tests 2018-2019-2020! He said “ I do not do surgery on lipomatosis! He agreed to ref. Me to Mayo in Jacksonville, but did not. I’m seeking help from any lipomatosis specialist, one in Houston tx I’ve sent an email to. I’ve dice had Mri of Spine again..per pain management now have a ‘Adrenal nodule ‘ in left kidney. Needing more testing! As I mentioned my 90 yr old husband declining w/Lewy Bidy, CHF, Kidney Disease, Hypotension! I’m his only caregiver. So many issues... no closure. With covid raging still, our plans to move to Florida near 2 adult daughters for help and bear Mayo, on hold. I would so live to get us both to Mayo! We have both rare, diseases.. not the norm. Thank you for any suggestions. Time is not on our side!