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MAC Medication and long term side effects

MAC & Bronchiectasis | Last Active: Jul 1, 2020 | Replies (24)
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@derbeltal

I know I do not comment very often but follow the comments and have received valuable answers. I have started the noise in my left ear. Cannot go to doctor as doctors in my area are doing televisits. This will not help as they will need to see me. My ID doctor said if I could continue until October, I will probably quit the meds as I have stayed the course even with all the side effects. I wonder if I will be ok since I only have 4 more months. Would love to hear from someone who has had this problem. Thank you so much. The comments from other MAC patients help so much.

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Replies to "I know I do not comment very often but follow the comments and have received valuable..."
Colleen Young, Connect Director | @colleenyoung | Jun 28, 2020

@derbeltal, you may also wish to read this discussion:
- Tinnitus and hearing loss from azithromycin https://connect.mayoclinic.org/discussion/tinnitus-and-hearing-loss-from-azithromycin/

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Sue, Volunteer Mentor | @sueinmn | Jun 28, 2020

@derbeltal If I was in your situation, I would do 2 things -call the ID doc right away and explain the change. Tinnitus is not rare, so you may be advised to watch and see if it progresses. If the noise proresses to noticeable hearing loss, stop the meds and contact the doc for an audiology referral. Many specialists are seeing select patients with urgent needs, and losing your hearing is urgent.
Have you either brought this to the doc's attention, or noticed a loss of hearing?
Sue

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Terri Martin, Volunteer Mentor | @windwalker | Jul 1, 2020

@derbetal Are you taking Azithromycin by any chance? That is a common one that can cause tinnitus. If you are on it, it can be substituted with Clarythromycin (if your suseptability test allows).

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