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MAC Medication and long term side effects
MAC & Bronchiectasis | Last Active: Jul 1, 2020 | Replies (24)Comment receiving replies
@debminuet If you are asking about long-term effects, may I ask first if you have currently got active MAC? Otherwise I am curious why the meds are being continued - many in this group use a more conservative therapy - nebulized 7% saline and faithful lung clearance - to keep the bugs at bay.
I will tell you that 6 months post-med, I have not recovered appetite or the weight I lost, tinnitus is still troublesome, but labs for liver, blood, etc look OK. One side effect was GI issues that removed my NSAID therapy for arthritis, so pain is now an issue. Will be consulting with pain mgmt specialist later this week. Also, there is suspicion that my bone density is compromised, so another consult...will report back on that matter.
Sue
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I know I do not comment very often but follow the comments and have received valuable answers. I have started the noise in my left ear. Cannot go to doctor as doctors in my area are doing televisits. This will not help as they will need to see me. My ID doctor said if I could continue until October, I will probably quit the meds as I have stayed the course even with all the side effects. I wonder if I will be ok since I only have 4 more months. Would love to hear from someone who has had this problem. Thank you so much. The comments from other MAC patients help so much.