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Severe Stenosis - Doc advises surgery

Spine Health | Last Active: Jan 23 10:05pm | Replies (64)

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@wisco50

I had a lumbar fusion - TLIF = transforaminal lumbar interbody fusion. 3 levels on one side, I think L and 2 on R, I’d have to look it up. Was in 11/2011. I had degenerative disc disease, spondolisthesis (?sp? where discs are not lined up) and can’t remember if herniated vs bulging discs. I had back pain but it suddenly became unbearable as a synovial cyst at L4 ruptured and bled into my spinal fluid/cord area. Woke me out of a sound sleep yelling like a banshee. I had GREAT relief once I recovered (I had a neck fusion with plating 6 weeks after back surgery) so the recovery was longer in general. But I did really well until about 3-4 years ago when I, STUPIDLY, did something at gym I knew I shouldn’t have done. My fault. Screwed up discs below my fusion. Last year I was told I needed another level of fusion at L5-S1. I was scheduled for it but changed my mind. Got other opinions and now have a spinal cord stimulator which helps a fair amount. I just really didn’t want to have another major surgery (too many surgeries for many things in past 10 years!). I definitely would check out at least another opinion or two. One thing to keep in mind, speaking as both a patient and former RN - get another opinion OUTSIDE of your doctor’s partners/clinic. It is often common for clinicians to ok their partner’s proposal without question. A second opinion outside should be able to utilize your recently done CT scan, MRIs, XRays, etc. so cost should be minimal and most insurance incl (I think) Medicare, pays for second opinion. Good luck!

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Replies to "I had a lumbar fusion - TLIF = transforaminal lumbar interbody fusion. 3 levels on one..."

Hi. If I pass the psychological assessment, I'm going to have a SCS trial later this summer. I read with interest your comment about a SCS helping a fair amount. Could you elaborate a bit about the ways in which it has helped you. For example, how far can you walk compared to before? What other forms of exercise can you do? Etc.
I had an L5/S1 microdiscectomy in 2010 during which the surgeon tore the dura. That was the start of ever increasing nerve pain. Was on opiates for 8 years but in 2018 I graduated from Mayo's 3-week pain rehab program. Had been doing okay but then about 18 months ago I developed allodynia in both buttocks. Now sitting has become terribly painful. In addition, I now have right-side lumbar pain and shoulder pain. It feels like my whole right side from lumbar to neck is trying to compensate for pain & weakness. Hurts to sit, stand, walk. Only time I get relief is when I'm asleep of lying on my left side with pillow between my knees.
I'm 65 years old and have gotten lots worse in 10 years. Fearful for what the next 10 will bring.

Thanks for any further info you can provide about your SCS. (By the way, what kind is it? I'm have a trial of Nevro's HF-10).

--Elsa