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Lupus diagnosis need help

Autoimmune Diseases | Last Active: Sep 17, 2020 | Replies (16)

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@dorrielee

The pain, swelling, insomnia, and severe fatigue started last August. At first I thought I was working alot of hours but my joints were really bad. I had a appointment with my doctor for a check up and told him how I was feeling. I get seizures when I don't get enough sleep so he became worried about the insomnia. He ran a bunch of tests. I'm not 100% sure of all the tests he ran. But in a few days he called me that the tests shown that I had Lupus. He put in a referral to the rheumatologist. I went to see him but at the time I wasn't in a flare up. He did a couple more tests on me and came to the conclusion that I had fibermyalgia and not Lupus. At my next appointment about a month ago I was in a flare up and I have taken pictures of my hands and other areas that keep swelling up that's when he came to the conclusion that it was Lupus. He put me on hydroxychloroquine.

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Replies to "The pain, swelling, insomnia, and severe fatigue started last August. At first I thought I was..."

@dorrielee I have found keeping a journal of symptoms, when they occur, how strong they are, time of day, your activity, etc. may assist you and your medical team in figuring out what is going on. Can you do that?

When I was diagnosed with lupus in 1988, it took several months, while they narrowed down disorders. Each battery of test results determined what they would do next. I have no idea if things have changed since then, but my guess is "yes" for how lupus is diagnosed.

We look forward to hearing about your journey to Mayo Clinic.
Ginger