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dorrielee (@dorrielee)

Lupus diagnosis need help

Autoimmune Diseases | Last Active: Sep 17, 2020 | Replies (16)

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Hi @dorrielee, I'd like to add my welcome and introduce you to other members in addition to @gingerw, who are talking about lupus like @toomanyoars @djanthony @jewel8888 @oregongirl @kgoodwin9 and @ejlm. You may wish to read more in these discussions:
– Lupus or not Lupus?: https://connect.mayoclinic.org/discussion/lupus-not-lupus-lupus-not-lupus/
– Tumid Lupus with SLE Symptoms?

If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

Dorrielee, what symptoms and tests led to your being diagnosed with lupus? Does anything seem to trigger your symptoms?

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Replies to "Hi @dorrielee, I'd like to add my welcome and introduce you to other members in addition..."

The pain, swelling, insomnia, and severe fatigue started last August. At first I thought I was working alot of hours but my joints were really bad. I had a appointment with my doctor for a check up and told him how I was feeling. I get seizures when I don't get enough sleep so he became worried about the insomnia. He ran a bunch of tests. I'm not 100% sure of all the tests he ran. But in a few days he called me that the tests shown that I had Lupus. He put in a referral to the rheumatologist. I went to see him but at the time I wasn't in a flare up. He did a couple more tests on me and came to the conclusion that I had fibermyalgia and not Lupus. At my next appointment about a month ago I was in a flare up and I have taken pictures of my hands and other areas that keep swelling up that's when he came to the conclusion that it was Lupus. He put me on hydroxychloroquine.