← Return to SSNHL with Sound Distortion / Crackling - Why??

Discussion

SSNHL with Sound Distortion / Crackling - Why??

Hearing Loss | Last Active: Sep 5 1:56am | Replies (15)

Comment receiving replies
@bgbg

The exactly same thing happened to me in Jan/2019. It wasn't my first episode (as I like to refer to them). The first happened in 2015. And like so many people have experienced, ENTs' ignorance of this condition is appalling. Some information (if you can find it when you need it most) indicates there is a window of opportunity to treat the SSNHL (within 3 or so days?), but when doctors are dismissive of the this frightening situation, we are at a disadvantage right off the block. After my first episode, in 2015, I was seen by an ENT who did prescribe a series of steroids. I recovered maybe 70% of my hearing. I considered hearing aides but I was just on the edge of needing them. But in 2019, the loss was horrible: Tinnitus in the absence of sound. And like you, there was a loud electronic screeching type of noise that distorted any sound. Lots of pressure. I know now that it was my left ear most affected. But it seemed like it was both because the deafness was so profound.... or so it seemed at the time. I was treated by low does steroids by my GP. An ENT prescribed a stronger steroid a few days later. And a few days after that, an oto-neurologist had an MRI ran (no physical explanations) and then cut the left ear drum and put a steroid behind it. I have lost about 60% of my hearing and have been wearing hearing aids for about a year. It's not natural hearing, but it helps. But, for me and I hope it will not be the same for you, the remaining distortion of sound in my left ear is the condition that makes understanding speech most difficult. The extreme pressure and tinnitus (lessened by wearing the hearing aids) and the electronic screeching were not permanent, but the sound distortion (to a lesser degree as when it first happened) is still a problem. I will watch the posts for your updates. I wish you well. If you learn of something that helps you, please share it.

Jump to this post


Replies to "The exactly same thing happened to me in Jan/2019. It wasn't my first episode (as I..."

My own voice sounds distorted eversince an ear infection in 2020. I'll get intermittent screech noises that last the fraction of a second. So many Drs don't care ... my problem was caused from a Dr. Not giving me an antibiotic in time... and now other doctors act like it's no big deal. I literally went from happy to feeling no joy... if my voice sounds like a broken speaker how can I enjoy a conversation... when I speak it makes me cringe and feel delated, depressed, and hopeless... I would never off my self but I don't enjoy ANYTHING ANYMORE! 🙁 I have a normal audiogram but tinnitus and a distorted voice... tinnitus I can ignore tinnitus but when my voice sounds distorted I CANNOT get used to this.

I want this problem to go away SO BAD! I was a happy person before this happened and now this condition makes it so I don't want to speak. I hear my normal voice simultaneously with: a very quick & high pitched screech, or my voice sounds fuzzy, crackley and only to my ears. This problem has literally taken all joy away from my life and all 7 ENTs act like: "hmmm I'm note sure what to tell you" ME: I'm not happy anymore and this makes me not want to speak Dr. I'm sorry about that I wish you luck. EVERY DR. IS NOT HELPING ME! I cried on the phone begging for help! NOBODY CARES! ONE ENT TOLD HIS NURSE HE DOESNT HAVE THE BANDWIDTH FOR MY PROBLEM (HE GRADUATED FROM AN IVY LEAGUE COLLEGE & STILL IS A HORRIBLE DR. I went to Johns Hopkins and the Mayo Clinic and they were both NO HELP!!!!