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Missing left kidney and neuropathy

Kidney & Bladder | Last Active: Jun 9, 2020 | Replies (6)

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@fiesty76

Hi, @bohdantr3, I was first diagnosed with neuropathy and subsequently the same year also diagnosed with stage 3 chronic kidney disease. Testing for the cause of the neuropathy lead to a pre-diabetes diagnosis. Interesting that both feet are affected but like yours, my left leg is worse with the neuropathy up to the knee. I am right handed and would have thought the right leg would have been more affected but wasn't given a reason.

Were you given explanations for the kidney disappearance? I have no idea if there is any connection between your missing kidney and neuropathy but was grateful to learn of the pre-diabetes diagnosis. Diet for kidney and diabetes have improved my lab values. I was told that the neuropathy was a slowly progressing ailment for which I am very grateful! Are you on a special kidney diet? No family history of diabetes, ckd or neuropathy but wonder if one organ is affected others might be as well?

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Replies to "Hi, @bohdantr3, I was first diagnosed with neuropathy and subsequently the same year also diagnosed with..."

About my Left Kidney. While in Ukraine, around 2009, my friend was supposed to take me to a clinic for my chronic neck and back pain. Car accident in 1995. She accidentally took me to get a ultrasound of my organs. Everything was good except my left kidney was a little smaller than my right kidney. I didn't think anything of it. I should have checked into it. Years later I had a bone density scan and they found that my left kidney was missing. I never went to a nephrologist to find out why it was missing. Because of my back pain I've seen many doctors so I had x rays and mri's always missing left kidney. Every doctor found my missing kidney interesting but not one of them advised me to see a nephrologist.
About the neuropathy. Around 2011, I started to feel discomfort under the ball of both feet, like my sock was under the ball of my feet. So I saw three different podiatrists. Nothing:( Later the discomfort slowly turned into pain up to almost my knees. I also had a little numbness in the tips of my right hand. So I saw a neurologist. His tests showed I had something called Peripheral Neuropathy. I never heard of it. He prescribed Lyrica 100mg three times a day, it helped just a little. Over the years I saw two other neurologists and they told me I have Peripheral Neuropathy. Now I'm taking 150mg of Lyrica three times a day and 30mg of morphine. It helps just a little. I have bad days and worse days. My left foot is worse than the right. I'm not diabetic and I had very extensive blood work done. I've been a vegetarian for 44 years so I don't think diet is a problem. Tried different drugs. Can't find out why the Neuropathy. But I did learn a new word, Idiopathic. I sit around more because being on my feet, walking or standing makes the pain worse. Some days are worse than others. Somewhere I heard that bad kidneys can cause neuropathy. So I decided to see a nephrologist. Last month because of the virus I only spoke with a nephrologist by phone. I have an appointment in mid July. Curious to hear what he has to say.
I've also been told I also have something called Paresthesia from my waist down.