Hi, I just came across your post and I was wondering if I might be able to get in on that fb group. I haven't found anybody anywhere that has even heard of TS-HDS even my own doctors. They are at there professional limit as far as knowing how to help me. I've been suffering in pain for 4 years now and have felt so very alone with no hope. So I would love if I could be part of a community of people with my same condition.