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TS-HDS Antibody and Small Fiber Neuropathy
Neuropathy | Last Active: Nov 13, 2023 | Replies (156)Comment receiving replies
Wow! I hope you are still checking this post. I was recently diagnosed with the abnormal TS-HDS antibody test result and have realized my neuro was not kidding when he said it was rare. Info is so hard to come by and until now I had not been in contact with anyone else who had this. I would love any information, links, groups etc.
So far I have only tried one round of 1000mg a day for 5 day Solu-Medrol infusions and they made everything worse so now, 2 weeks out, I am still in bed struggling with pain, fatigue, numbness and migraines.
I am really interested in info from anyone who has tried IVIG and/or any other treatments and how they responded
Thanks
Replies to "Wow! I hope you are still checking this post. I was recently diagnosed with the abnormal..."
Last year I was treated with Solumedrol. It was successful at bringing my TS HDS antibody level from 34,000 to 11,000. In February 2021 I had a tapering dose of Solumedrol starting at 1000 mg at 1x/week and tapering down to 100mg over a 12 week period. It did not improve my pain but improved my weakness slightly. It brought my antibodies down to 11,000. I just started my second round of treatment ( 10 months later). The side effects have been minimal so far. Hoping for the best.
do you have the monoclonal Igm mgus that is basically the cause of this
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Can somebody help me please. In the process of educating my Dr. I requested the TS-HDS antibody test to see if I have SFN . I have the biopsy scheduled for April so I thought it would make sense. My Dr. gave it back to me a bit that it really isn't a proven test for SFN. Any insight into this,,,Thanks