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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)
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@auntiegen

Hi lilotter! I'm on Facebook and would like an invite to join the page discussing TS-HDS neuropathy. I was diagnosed about a year ago; plasma exchange didn't work and now I'm in round 4 of IVIg. Jury is still out. Diet and lifestyle do make a difference. I'm on a very clean diet (and no gluten, dairy, sugar), and also am trying to avoid stress--that's a big trigger for me. Many thanks!!

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Replies to "Hi lilotter! I'm on Facebook and would like an invite to join the page discussing TS-HDS..."
John, Volunteer Mentor | @johnbishop | Jan 12, 2021

Hello @auntiegen, Welcome to Connect. No need to join the TS-HDS Antibody and Small Fiber Neuropathy. All you have to do is post and share your experience or ask any questions you have. If you want to receive a notification for anytime someone posts in the discussion, scroll to the top of the discussion and click the +Follow link at the bottom of the discussion.

Thanks for sharing what helps maintain a clean diet. I think stress can be a trigger for a lot of people. I find that exercise and staying away from watching the news on TV help me keep my stress levels down. Here's some tips I found that you may already know about but may help a little.

16 Simple Ways to Relieve Stress and Anxiety: https://www.healthline.com/nutrition/16-ways-relieve-stress-anxiety

Have you found something that helps you reduce or relieve stress?

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pfkrieger | @pfkrieger | Feb 1, 2023

Hi,

I am suffering from painful SFN post Covid and my test results were very high for anti-TSHDS-IgM antibodies (50.8). My doctors won't prescribe IVIG or plasma exchange and are just treating it with giving me gabapentin. Where are you getting care? Could you recommend a doctor/hospital to go to that will be open to IVIG?

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