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TS-HDS Antibody and Small Fiber Neuropathy

Neuropathy | Last Active: Nov 13, 2023 | Replies (156)

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@johnbishop

Hi @lmcfm1, The first time I had heard of the TS-HDS antibody was when you mentioned it in your last post and I posted the following links that I found. You can also do a search on Google Scholar (https://scholar.google.com/) to see if you can find more information. Hopefully some other members may be able to provide more information on TS-HDS antibody testing.

Several Atypical Presentations of TS-HDS Associated Neuropathies: https://n.neurology.org/content/86/16_Supplement/P6.269
One to possibly watch – IVIG in the Treatment of Autoimmune Small Fiber Neuropathy With TS-HDS or FGFR-3 Antibodies
https://clinicaltrials.gov/ct2/show/NCT04153422

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Replies to "Hi @lmcfm1, The first time I had heard of the TS-HDS antibody was when you mentioned..."

Thank you for the information which was helpful. I was hoping some members who have this same anti body might respond too. There seems like there is not much information out there regarding this particular anti-body and personal stories of whether IVIG helped, and how many treatments they had, etc, I’m scheduled soon so will be able to provide feedback.

I’m not sure this is the right section to ask this question but…I have intermittent pain on the end of my big toe that feels like it is on fire (that’s the best way to describe it but the pain isn’t that severe). Does that sound like the initial stage of peripheral neuropathy?