@janrn1 HI Jan, I am a lung patient - asthma, bronciectasis and mycobacteria avium complex (MAC - a relative of TB), but not a Mayo patient. What I have learned in this journey is that you need both a lung doc well-versed in your condition and an infectious disease doc, preferably people who are accustomed to working together. If you are located in an area with multi-disciplinary clinics, I would start there. While Mayo is awesome, it helps in the long run to have a local team - maybe working in tandem with the Mayo docs - that is what my brother does with his complicated asthma condition.
If you let us know where you are located, there will be someone in the group with a suggestion for you.
Sue